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May 11, 2006


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cat fitzgerald

Yay! I am soo glad that you are up and running! With pics! xxx cat


What a lovely first post! Welcome to Club Mom blogging.


So glad you can write about Elias. He is an inspiration to us all.

Krystal Kompkoff

I can't wait to share this with my friends! This is great :)


Wow and waaaaaah. What an incredible woman you are and what an amazing son you have.
I can't wait to keep reading.


I am so glad to have found you. My kiddo also came four months early and it is so nice to read about a family similar to ours. Thanks for sharing your story.


I understand how you feel I have had so many of those days, I have had 3 premature babies, James was born @ 23 weeks, Maddie, 25 weeks and Jeremy, 25 weeks. I DO understand. I lost James after 9 days, Maddie for all intent and purposes she's healthy, she does have ADHD and vision problems, we don't know the long term effects of the medication to close her PDA she was given alot more than the required amount because of her size and her severe respitory issues they did't want to her to undergo heart surgery. And then there's Jeremy my absolute biggest challenge, he has severe vision problems, cerberal palsy, autism, breathing issues and a feeding tube. Please know that you are not alone even when you feel like you are, if you ever need to vent or chat please e-mail me. I feel like I have had medical training some days because of all of this, do you feel the same some days?


He is truly a miracle, and just reading your post brings tears to my eyes. (Happy ones!)

f aaerden

Lovely boy and Great blog - you're doing great, littlt buddy!

Patricia C.

I adopted my twin granddaughters. They were born at 28 weeks. Patricia weighed 2lbs. 11 1/2 oz. Elizabeth weighed 2lbs. 11 oz. They were very small. We could not touch them or stimulate them in any way without hurting them. Both girls were placed on feeding tubes, breathing tubes, apnea monitors. They received several transfusions. They were both treated with medicine for PDA. Elizabeth's closed but Patricia's didn't. The both had a right ventrical bleed, #2. It was a miracle that they survived. Patricia had surgery for pyloric stebosis and also had a procedure to close her pda. The girls have given me great challenges over the years. They hit their milestones later then most. Their behaviors were (and are) extreme. By the tine they were three, we knew they were going to need special services. At age 3, they started play thrapy. At age 6, they were diagnosed witg ADHD and ODD. They had to play around with the medicines many times to try and get them right. At age 9, they were diagnosed with bipolar disorder. Patricia has been hospitalized once in the children's psyche unit. Elizabeth has bee hospitalized about 6 times in the child psyche unit. Most times they have been in great need of medicine management. They are both extremely bright girls but are in special clasases because they cannot function in big groups. They are now 12 and going into the eighth grade. They are a challenge and a blessing. I love them and could not ever see life without them. If you would like to here some of the specifics of their growing up, pleas e-mail me. Know that you are not alone. Knowing that I am not alone is great for me. Good luck,

Jo Schaffer

Tears in my eyes already. My son is 2 and a half now and has begun to stumble around without his much we still don't know- but as heart wrenching as it is- that is also how beautiful the experience has been. I feel you.


I waas recommended this web site by my cousin. I'm not sure whether this post is written by him as nobody else know such detailed about my trouble. You are wonderful! Thanks!

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Hey! I know this is kinda off topic however , I'd figured I'd ask. Would you be interested in exchanging linkks or maybe guedt writing a blog post or vice-versa? My site goes over a lot of the same topics as yours and I believe we could greatly benefit from each other. If you're interested feel free to send me an e-mail. I look forward to hearing from you! Excellent blog by the way!

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